Quote of the Day

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This is one of my classic mistakes.  It’s a negative cycle; I compare myself to others thinking that what I see is truth (which is not always the case), then I feel bad about myself and my life and I have to pick myself up and start over again with that positivity.  It goes back to that other age old saying, “Be kind.  For everyone you meet is fighting a battle you know nothing about.”

Epilepsy vs. Mother Nature


“I had no idea how difficult it was for you, I feel so bad like I could have taken you to more places.”

“Don’t be silly” I said, “You weren’t to know, my life is to be lived a certain way because of the limitations I have I don’t expect everyone to drop their lives so they can chauffeur me around to wherever it is I want to go.”

“No, but I can’t believe you’ve never been out here to hike, it’s so beautiful, you’ve been here nearly three years and I never thought to offer.”

“Honestly, it’s absolutely fine; we’re here now aren’t we?  Better now than never!”

This is a conversation which took place between me and a very good friend recently when we went for a fall hike.  As we drove to our hiking destination I appreciated it was the first time I had been outside Central Seattle as the leaves turned with the season’s transition and it was truly stunning.

Having been able to maintain my independence over the years despite my seizures, there were/are always adjustments that need to be made in one area or another.

As many of you know and will have experienced yourselves, I have never been able to drive due to my seizures.  I’ve never been seizure free since the age of eleven – I am now thirty six.  Therefore, through my many years of moves and relocations (I think I’m up to thirty six moves now!), I have always had to ensure my location is close to a town or city.  This is so I can be within walking distance to buy food, go shopping, have a local pharmacy for my meds, a doctor for my prescriptions and to remain close to buses and trains to enable me to maintain my independence.

The only place I have lived that disabled that ability was when I was living and volunteering at the Camphill Community in Kimberton Hills.  While I certainly don’t regret the life experience as I went back for a second year, it really was a wake-up call as to how much thought needs to actually go into where is suitable for me to live.  I’m just fortunate that I’m naturally a city girl!

The community was located in a fairly remote area in the stunning countryside of Pennsylvania and the road that ran alongside it would lead to a little town which was an approximate twenty minute drive away.  There was no pathway, so to a degree one would be dicing with death to make the twenty minute walk to Wholefoods which I occasionally did, the only shop for a fair distance.

It was challenging for me to rely on asking neighbors in the community to take me somewhere at a specific time as it wasn’t always convenient for them.  I felt as though I was a burden and an inconvenience.  Days off were a little easier as there would normally be a group of us exploring somewhere together anyway.


It was after that little chapter in my life when the realization dawned that it wasn’t practical for me to live in a place that didn’t have a transport system allowing me to discover and investigate at my own pace.  I was grateful to all the people who had assisted me but I definitely felt a significant loss of independence.  I was a grown adult after all; I should be able to achieve everything that everyone else can, right?!  No is the answer.  Without victimizing myself, it is a reality that I am fundamentally different because of the epilepsy, not in a negative way but such that it makes me accept that I need to make adjustments in order to live alongside this life-long companion as peacefully as possible.

As the years have gone on the wisdom gained, as I live through a myriad of experiences, has brought me to the point of understanding that sometimes I do need a little help from my friends and that it’s okay.

So as my friend and I embarked on an invigorating hike with spectacular views, we agreed that I would let her drive me around in future and that I had to let her show her support and care for me in a way that was advantageous to me.  After all, if she didn’t, we wouldn’t be able to explore the state in which we live together.  And it was at that point, I was reminded again what incredibly special and supportive  friends I have, individuals who are willing to go the extra mile so I can live an even fuller life than I already do now.



Quote of the Day



Whilst there are certain situations that we don’t have control over, we do ultimately have control over our responses to them.

Epilepsy and seizures, we may not have control over the condition but we can manage and choose our attitude and how we deal with it.  We are responsible for our own research to fill in the gaps which the doctors don’t provide us with; we’re in charge of our own perspective; do we use it as a crutch to stop doing things or do we see the silver lining and accomplish more because we’ve thought outside of the box?

So whilst we can’t change epilepsy, we are blessed with a new day everyday and therefore we get a chance to ‘do over’.  The question now is, how is your day going to end?

Quote of the Day


I LOVE this quote!

So first of all, I would like to acknowledge that this quote represents Indigenous People’s Day, Canadian Thanksgiving and Columbus Day.

As a Brit I celebrated none of these holiday’s growing up, but as my life has taken me to different places, I can now truly reflect on the meaning of it all.  Whilst giving thanks is something to be done daily, it is always a nice reminder to have it officially acknowledged too.

I chose this quote in particular today because from the epilepsy perspective there are days I have not wanted to get up, not wanted to talk to people and not wanted to leave the house.  It’s on these days that it’s almost more necessary to find gratitude in what I do have.  I am grateful I can physically leave the house and travel alone without a carer; I’m grateful I can actually have a conversation, even if it is challenging; I’m grateful that as frustrating as the side effects are from medications, I have different medications available to try; it’s one step at a time.  No matter how hard things are, it is a blessing to have a heart that pumps blood round our body and lungs which allow us to breathe.  That’s an amazing thing.  So what’s in the bottom of your glass?

Quote of the Day


This one really rings true for me at the moment. Having oodles of absence seizures every day right now, it quite frankly makes me want to hide from people and having to talk.  That’s my negative mind.  My positive mind tells me whatever I may be experiencing is part and parcel of this life’s deal and so staying in the house is not an option.  Get out, go do what you normally would do.  Yes, conversations are difficult, yes I’m sure people are perplexed as I dive in and out of conversations half cut but it doesn’t matter.  I’m living my life and these little tinkers aren’t going to prevent me from doing so.  I just needed this quote to remind me of that and perhaps you do too – you can conquer!

Quote of the Day


It’s easy to lose ourselves in a lack of self worth when we’re battling a health condition. Sometimes it’s easy to wake up and ask oneself, “What’s the point?” because we’ve reached breaking point or a simple task today is a mammoth struggle.

So for all of you out there fighting epilepsy and any other debilitating health condition, this one is for you – you are good enough!

Stress Elimination, Seizure Reduction & Island Living

The aqua colored water dotted with the dark congregations of coral below the surface just screams,

“Jump in!”

However, I am torn between that and the need to regurgitate the words tumbling around my head before they disappear.  I’m sitting here writing this in an exercise book, (no doubt now constituted as old fashioned) and I look up to nothing short of a paradise.


The majestic mountains tower over our little water bungalow offering both protection whilst at the same time ensuring we know who this island belongs to; after all, it was formed as a volcano between 1.5 to 2.5 million years ago – now extinct, lucky for us.

With the sunshine, warm breeze, cloudless skies and idyllic views, I realize a number of things have occurred and all of them are stress related – or not as the case may be.

We have been staying here on the island of Moorea just Northwest of Tahiti for two days now on our honeymoon.  When I say that it is impossible to be stressed here I mean just that.  I can lie on the beach in Seattle too, but as lovely as that is it’s just not the same!  The reason I know this is because of the recognition of effects and changes within my body.


Digestion has always been a troublesome boomerang of sorts that, having just figured out methods to remain well, something changes and I’m back at square one again with those familiar friends: nausea, gas and bloating.  The last couple of months have seen indigestion and acid reflux become the norm after food consumption.  It seems no matter how neutral the alkali content or however healthy the food I experience the same result.   That duration of time was also exceptionally stressful.

Stress is a sneaky little chap, it is deceptive in that it makes one feel like there is less stress present than in reality.  That right there is one of the incredible functions of our bodies.  They manage and heal whatever we throw their way tremendously well.  Quite honestly, I’m not surprised we’re riddled with allergies, cancers, skin conditions, respiratory problems and other health issues considering what we put in our systems and subject ourselves to.  Anyhow I digress…

As those of you who have organized any sort of wedding will know there is plenty to do with little extra tasks slinking out of the background as an added surprise.  Life clearly has a sense of humor because when you throw in some visa issues, challenging immigration officers and a time limit of six months to organize the wedding – the pressure is on!  But now, I live in the present.   No more organization, just tranquil island life with a few virgin piña coladas on the beach for good measure.

I am eating acidic foods and I can happily report that I have none of the above symptoms.

In regards to my epilepsy, well, my body is so at peace right now I don’t know if I’ve even had any seizures.  This then begs the question, just how much is stress accountable for seizures and ill health?

There has been plenty of speculation and research both in my blog and by many people who have made similar discoveries to mine so this is more of an age old question but for some, it’s the first they may have heard of it.

It seems horrifying that something as simple as visiting an island for just two days can potentially eliminate seizure activity and digestive issues.  My next thought is that of course, realistically, we can’t all just run off to a an exotic island, so how do we integrate those aspects of being on that island into life in order to recreate that stress free existence?


This is a theory which has been floating into the abyss of my mind for a fair few years.  I’ve recognized the correlation between the two and for each person their ‘how’ and ‘what’ will differ from the next one.  It’s only in my current situation since moving to Seattle and immigration determining my fate, that I see the blessing in disguise.

I believe it will be something that is a life-long learning curve.   I think the fundamental basis is that as a sufferer of a condition whether it is epilepsy, arthritis, asthma, eczema etc., you have to be willing to sacrifice and make lifestyle changes for your health to improve whether it be through diet, alcohol consumption, financing therapies or supportive vitamins.  There is no pill which will cure everything and I think the sooner we realize it is down to us to make the modifications, the sooner we will see a significant improvement in our wellbeing.